Congenital Sucrase-Isomaltase Deficiency (CSID)
Nutrition Counseling in Farmington Hills, MI

Living with CSID can mean a lot of trial and error with food, uncomfortable days, and stress around eating. Our Registered Dietitians help you finally understand your food intolerances and build meals that help you to feel good again.

How Our Dietitians Help you with CSID

Diet is at the center of CSID care, but the right plan looks different for everyone. You deserve more than to just be told to avoid a generic list of foods or to solely rely on enzyme therapy. We'll help you:

  • Find your personal tolerance level to sucrose and starches, adding foods back slowly and tracking how you feel so that you can minimize foods to avoid

  • Understand where sucrose and starch hide in foods, drinks, and even some medicines

  • Fill nutrition gaps so you still get enough essential calories, fiber, vitamins, and minerals

  • Support gastrointestinal symptoms that often accompany food intolerances like bloating, diarrhea, and bowel urgency/incontinence

  • Plan real-life meals: grocery lists, simple recipes, eating out, and more

  • Coordinate with your care team, including if your doctor prescribes enzyme replacement therapy

What To Expect

Frequently Asked Questions

Can a dietitian help with CSID?

Yes. A Registered Dietitian helps you limit sucrose and starch as needed, find your personal tolerance, and keep your diet nourishing and varied. MP Nutrition offers CSID nutrition counseling in Farmington Hills, MI, and nationwide by video.

What foods should I avoid with CSID?
It depends on your unique tolerance. Every person with CSID has a different tolerance level to sucrose and starch. Some people may tolerate certain amounts of sucrose, others may tolerate certain amounts of starch, and some people may or may not be able to tolerate both at certain levels in a given meal. A dietitian can help you find which foods work for you and in what portion sizes, rather than cutting out more than you need to.

Will I always have to follow a strict diet?

Many people can widen their diet over time by adding foods back slowly and tracking symptoms. CSID is a lifelong genetic condition, so the goal is the most varied diet your body comfortably tolerates. Enzyme therapy can help expand what foods you tolerate.

Some individuals experience “acquired deficiency” of disaccharidases including sucrase, isomaltase, and lactase. This is where trauma to the small intestine prevents the production of certain digestive enzymes. We see this in cases such as untreated Celiac Disease and Inflammatory Bowel Syndrome. Over time as the intestines heal, it is possible to see improvements in what foods are tolerated.

Does using enzyme replacement mean I can eat anything with CSID?

Not necessarily. Prescription enzyme therapy helps digest sucrose, but it doesn't fully digest starch. Your doctor will decide whether it's right for you, and we'll help you plan meals around it. We also have many patients that choose not to use enzyme therapy because it can be very expensive if insurance does not cover it adequately, and sometimes enzyme therapy can actually make symptoms worse. In cases like these, dietary modifications will be the main management tool.

Can adults have CSID?

Yes. CSID is present from birth, but some people aren't diagnosed until adulthood. Adult symptoms may be milder or come and go, and are sometimes mistaken for other digestive conditions.

Do you work with children with CSID?

Yes. We work with patients of all ages with CSID.

How much does it cost, and is it covered by insurance?

Your first 60-minute visit is $160, and 30-minute follow-ups are $80. MP Nutrition is out-of-network with insurance, and payment is due at your appointment. If you have out-of-network benefits, they may apply but you need to verify your coverage. We also accept HSA and FSA cards.